Merry Christmas! We had a great one, just the five of us here at home. We are so blessed by family who sent so many fun presents for the kids to open. It was unusually cold here, about 45 degrees!! I am loving it!
A little Ezra update: he is now over 4 months old! He has started weekly sessions of both physical and occupational therapy. He will be starting feeding therapy as soon as the find an home therapist. He's not a fan of tummy time, but we keep working on it. He has certain goals he needs to meet. He will have a slue of tests in the new year, more extensive genetic tests, an MRI, and some other test to determine the rate of firing of his neurotransmitters. He's not growing because he uses too much energy to do things and the neurotransmitter rate might be the issue...So, hopefully we'll know more about his disabilities after these tests but we cannot do them until we have the new insurance (we are applying for insurance designed specifically for children with disabilities). It's a constant waiting game when it comes to our little man. And he never complains. He's such a good baby, considering everything he has to deal with on a daily basis.
